Completing an exciting year for Lipedema Research - Lipedema Foundation (2023)

Von Guy Eakin, PhD

For many years, an annual review of the lipedema literature was a relatively simple exercise. Between 1950 and 2014 there was only one year when the field produced more than 10 items in a single year. Fast forward to today as we celebrate 50 new posts since January 1st, 2021. Notably, another metric is also changing. The proportion of articles presenting new data versus articles summarizing previous work (often on medical education or presenting new hypotheses) increased by almost 10%.

Taken together, these numbers mean that half of the studies ever published in the Lipedema Survey have appeared in the last 3.5 years!

The focus of the Lipoedema Foundation is of course on this data. We fund around 20% of the work published in recent years and remain the world's largest funder of lipedema research. Our own scientific strategy is to create an environment conducive to effective clinical research. To achieve this, we're focusing on three things—people, ideas to test, and actions to take—each of which has made progress this year, as detailed below.

So as we wrap up 2021, let's look at some of the research publications that are truly ushering in a new era of thinking in lipedema research.

we need people

In the past, recruiting patients with lipedema for research has been a challenge. This is one of the reasons why we are so pleased to pass the milestone of 2,000 registrations in the Lipedema Foundation registry. But the research requires more than eager volunteers. Taking lipedema into a new era requires connecting a growing ecosystem of people living with lipedema with a professional community of researchers, clinicians, and other professionals.

(Video) Holistic Treatment for Lipedema: You Can Make it Better - LE&RN Symposium

This year we toast to good news as the American College of Cardiology and other institutions became aware of lipedema aMain purpose of the extended practical training[1]. We had important publications from the US Standard of Care [2] and updates on management of lipedema published in Spain [3]. We also welcome the continued contribution to lipedema work from outside of the traditional laboratories in Europe, Australia and the United States. Chile [4], Brazil [5,6], Morocco [7], Jordan [8], Russia [9], Turkey [10,11] and China [12] contributed papers to lipedema research this year.

We need new ideas for new therapies

What does the future hold? What does science tell us, are the levers that future therapies can pull to change the course of lipedema? Many of these stem from early discovery research, in which scientists question how healthy bodies stay healthy and what changes begin the chain of dominoes we call lipedema. One of the most irritating and difficult to pinpoint dominoes is the link between lipedema and hormonal changes. Numerous reviews on lipedema explain that the symptoms probably begin at times of hormonal changes, especially during puberty, pregnancy and menopause. But very little scientific research, apart from astute observations by patients and physicians, definitively supports this assumption.

Two peer-reviewed white papers were published this year that begin exploring possible hypotheses linking the role of estrogens and other sex hormones in lipedema [13,14]. The production of estrogens in the body leads to a variety of events that can be associated with the production of adipose tissue. From this perspective of lipedema, early hormonal changes can directly stimulate fat proliferation and inflammation through multiple mechanisms, each of which could potentially be the target of new therapy. In particular, recent genetic work has begun to highlight specific genes known to be involved in the regulation of sex hormones as they may be implicated in the development of lipedema-like symptoms [15]. (Disclosure, the three papers discussed in this paragraph were supported by the Lipedema Foundation).

What happens after this hypothetical hormonal trigger is largely unknown, but very interesting work published this month supports the idea that lipedema fat is biologically distinct from healthy fat in terms of its ability to proliferate [16]. In this study, materials from liposuction were compared with similar materials from women without lipedema. On analysis, several molecules appeared to be present differently in lipedema than controls. One of these molecules, Bub1, is known to be involved in cell replication, suggesting that it may be a regulator of lipid proliferation or the behavior of other cells, such as cellular cells. B. stem cells, in a way that eventually leads to the symptoms we know as lipedema.

We need to know how current treatments work

The aim of the research is the prevention and treatment of lipoedema. But how do we do that and what can be tested? Let's start with the obvious - changing your diet. You can find many websites and social media posts dedicated to sharing personal testimonials about which diets work and which don't. What is lacking so far is published data to document these claims as part of a lipedema clinical trial. On the research side, there has been some well-supported research and hypotheses for specific approaches to dietary management of lipedema [17,18]. Unfortunately, these websites and books exist with no published data asking the simple question, "What diets work, under what conditions, and for whom?"

That changed in 2021 with the work of Italian researchers. In a small but controlled study of 29 women with lipedema, they documented the success of a low-calorie Mediterranean diet [19] in reducing overall weight and managing pain and fatigue in women with lipedema. Additionally, two publications on the popular ketogenic diet provided the first structured clinical data (randomized controlled trial and repeated measures study) suggesting that overall weight loss and reduction in pain symptoms can be achieved during the modified ketogenic diet or other anti-inflammatory diets [9,20].

Overall, these studies also continued to support the observation that lipedema is not necessarily associated with poor metabolic health, as patients tended to enter studies with normal values ​​for standard laboratory measurements of metabolism. Likewise, all studies have supported the idea that tissues affected by lipedema are more resistant to dietary intervention than other areas of the body. Given that various diets and modifications have been tested with similar results, we think this also supports the idea that no diet will be a "magic bullet." The best research to guide individual decisions is personal experimentation, guided by the medical advice of aqualified medical professionalsas a certified nutritionist.

In addition to the much-anticipated nutritional research, new data on other popular therapies were published this year and are discussed in the following sections.

(Video) Understanding the Voices of Lipedema: Stories of Grace, Hope & Resilience - LE&RN Symposium

We need ways to measure lipedema

Even with the emergence of new therapeutic ideas, new studies have provided evidence of the effectiveness of other therapies commonly used in Lipedema. While it may seem simple to ask “Does it work?” the answer to that question can be complex. You need to ask: “What symptom is addressed?”, “How much has this symptom changed?” and “Did it change enough to matter to the patient?”. The Lipedema field is beginning to take inventory, not just of its treatments, but also of ways that these issues are addressed.

For example, nonsurgical and conservative treatment of lipedema usually includesComplete decongestion therapy(CDT) and its components, including Exercise, Manual Lymphatic Drainage (MLD), Compression, Skin and Self Care. The value of these treatments has been questioned in the absence of solid data. Notable data on MLD and CDT came this year, first in publications from Turkey, which reported that a combination of MLD, including MLD and intermittent pneumatic compression (IPC), resulted in a statistically significant reduction in limb volume after daily treatment for 5-6 days weeks [10,11]. Limb volume reduction is a common measure of lipedema treatments, but what this means is not necessarily clear. With this in mind, one study [10] went even further and compared patients receiving exercise with CDT or IPC or exercise alone in women with stage 3 and 4 lipedema. Although it was a small study (~10 patients per group ), ablind Analysisshowed statistically significant improvements in volume, but also alleviation of important symptoms such as pain, limb function and other measures of quality of life.

An exciting finding came last month when researchers at Vanderbilt University Medical Center asked similar questions about CDT and MLD in a proof-of-principle study [21] (Disclosure: This study was supported by the Lipedema Foundation). But unlike previous studies, these researchers looked at whether physical therapy benefited patients with early-stage lipedema at stages 1 and 2. Due to the small sample size, this is difficult to interpret.

What is interesting, however, is that the study also used MRI imaging to measure sodium concentrations in the skin and near fat. The same group previously showed that sodium levels correlate withIntensity and stage of pain[22]. They have now demonstrated the remarkable discovery of a measurable biomarker associated with a symptom that appears to change in response to therapy! This needs to be replicated in larger studies, but could very well be a milestone in the field.

Conservative therapies weren't the only current therapies for the lipedema examined with new measurements this year. Liposuction has sustained an ongoing parade of literature supporting improved measures of quality of life in women with lipedema after tumescent and water-assisted liposuction surgeries. Two articles were added to the liposuction literature in reviews of medical records [23] and research techniques [24] that promoted generally positive results. But the history of liposuction research is the history of much in the field of lipedema—a decades-old field—that is still in its infancy. Despite the tremendous growth in this field, the field remains small and it remains difficult to assess the strength of the evidence from a small number of studies with small numbers of participants, lack of comparisons to other treatments, and measurement uncertainties.

But for now, we're grateful for the growing field of research. We want to celebrate the people who have joined the journey and bring new interests and new data to the field. And of course, no one can thank enough the hundreds of brave women with lipedema who participated in the studies published this year. We are excited and impatient. And we are pursuing our own scientific strategy to guide the research toward better diagnostics that advances lipedema research and to develop the tools we use to understand and treat this condition.

To conclude this year, the Lipedema Foundation announces 16 new awards focused on measurement and the development of new therapies, two of the three elements needed for a new era of clinical research on lipedema. The final element is you: whether you are a healthcare professional, a patient or a healthy friend of a woman with lipedema, there is certainly a role for you to advance this area. Check out oursNewsletterand blogs in the coming weeks to find ways to connect with research. All of us at the Lipoedema Foundation wish you health and happiness in 2022 and for years to come.

REFERENCES AND LINKS MENTIONED

(1)Schöpfer Mark A.; Hamburg Naomi M.; Calligaro Keith D.; Casanegra Hannah I.; Freeman Rosary; Gordon Phyllis A.; Gornick Heather L.; Kim Esther S.H.; Leeper Nicholas J.; Merli Geno J.; Niazi Khusrow; Olin Jeffrey W.; Quiroz René; Rapo Case Elona; Wasan Suman; Andrew R. Waxler; Weißer Christopher J.; Weißer Solaru Khendi; Williams Marlene S. 2021 ACC/AHA/SVM/ACP Statement of Advanced Training in Vascular Medicine. Auflage: Cardiovascular Interventions 2021, 0(0), HCV.000000000000079.

(Video) What is Lipedema? (short version)

(2)Herbst, K.L.; Kahn, LA; Iker, E.; Ehrlich, C.; Wright, T.; McHutchison, L.; Schwartz, J.; Treno, M.; Donahue, PM; Lisson, K.H.; Faris, T.; Miller, J.; Lontok, E.; Schwartz, MS; Dean, S.M.; Bartolomeu, J.R.; Armor, P.; Correa-Perez, M.; Pennings, N.; Wallace, E.L.; Larson, E. Standard of care for lipedema in the United States. Phlebology 2021, 02683555211015887.

(3)Forner-Cordero, I.; Forner-Cordero, A.; Szolnoky, G. Update zum Lipödem-Management. Int Angiol 2021.

(4)Pereira, N. Lipedema: More than a "fat leg" problem. Update on pathophysiology, diagnosis and surgical treatment. Journal of Surgery 2021, 73 (3).

(5)Amato, ACM; Benitti, D. A. Lipedema cannot be treated surgically: report of 5 cases. American Journal of Case Reports 2021, 22.

(6)Amato, ACM; Saucedo, DR; Santos, K. and S.; Benitti, DA. Ultrasound criteria for the diagnosis of lipedema. Phlebology 2021, 2683555211002340.

(7)Abdelmouttalib, A.; Khallayoune, M.; Ismaili, N.; Senouci, K. Lipedema with genital lymph vesicles. Unser Dermatol Online 2021, 12(2), 222–223.

(8)Al-Wardat, M.; Alwardat, N.; Lou De Santis, G.; Zomparelli, S.; Gualtieri, P.; Bigioni, G.; Romano, L.; Di Renzo, L. The association between vitamin D levels and mood disorders in a cohort of patients with lipedema. Horm Mol Biol Clinic Invest.

(9)Apkhanova, TV; Sergeev, V.N.; Krukova, M.M.; Vasilyeva, V.A.; Kulchitskaya, D.B.; Konchugova, TV; Sapelkin, S. V. Influence of ketogenic nutrition and nutraceutical correction in complex treatment of lipedema of the lower extremities. Restorative Medicine Bulletin 2021, 20(5), 26-36.

(10)Atan, T.; Bahar-Özdemir, Y. The effects of total decongestive therapy or intermittent pneumatic compression therapy or exercise alone in the management of severe lipedema: a randomized controlled trial. Lymphat Res Biol 2021, 19(1), 86-95.

(11)Volkan-Yazıcı, M.; Yazici, G.; Esmer, M. The effect of complex decongestive physiotherapeutic applications on lower extremity circumference and volume in patients with lipedema. Lymphat Res Biol 2021, 19(1), 111-114.

(Video) Comprehensive & Creative Physical Management Strategies for Lipedema - LE&RN Symposium

(12) Long, L.W.X. [Research Progress of Lipoedema] Mandarin. Basic and Clinical Medicine 2021, 41(3), 438.

(13)Katzener, K.; Hill, J.L.; McIver, K.B.; Foster, M. T. Lipedema and the possible role of estrogen in excessive accumulation of adipose tissue. International Journal of Molecular Sciences 2021, 22(21), 11720.

(14) Al-Ghadban, S.; Teeler, M.L.; Bunnell, BA. Estrogen as a contributing factor in the development of lipedema. In Physiology and Diseases of Adipose Tissue; IntechOpen, 2021.

(fifteen)Grigoriadis, D.; Sackey, E.; Wealth, K.; Zanten, M.van; Brice, G.; England, R.; Mühlen, M.; Dobbins, SE; Lipoedema Consortium, G.E.R.C.; Jeffery, S.; Dong, L.; Savage, DB; Mortimer, PS; Keeley, V.; Pittman, A.; Gordon, K.; Ostergaard, P. [Preprint] Investigation of clinical features and genomic associations in the “UK Lipoedema” cohort; 2021; p 2021.06.15.21258988.

(16)Ishaq, M.; Bandara, N.; Morgan, S.; Nowell, C.; Mehdi, AM; Lyu, R.; McCarthy, D.; Anderson, D.; Creek, DJ; Achen, M.G.; Shayan, R.; Karnezis, T. Important signaling networks are dysregulated in patients with the adipose tissue disease lipoedema. Int J Obes 2021, 1-13.

(17) Ehrlich, C.; Iker, E.; Herbst, K. L. Lymphedema and Lipedema Diet Guide: Foods, Vitamins, Minerals, and Supplements; Lymph Nodes: San Francisco, CA, 2017.

(18) Faerber, G. Nutritional therapy for lipoedema and obesity - results of a guideline-based therapy concept. Vasomed Magazine 2019, 2nd

(19)Di Renzo, L.; Cinelli, G.; Roman, L.; Zomparelli, S.; Lou De Santis, G.; Nocerino, P.; Bigioni, G.; Arsini, L.; cinnamon, G.; Pujia, A.; Chiricolo, G.; De Lorenzo, A. Possible effects of a modified Mediterranean diet on body composition in lipedema. Nutrients 2021, 13 (2).

(20)Sorlie, V.; De Soysa, A.K.; Hyldmo, Å. ONE.; Retterstol, K.; Martins, C.; Nymo, S. Effect of a ketogenic diet on pain and quality of life in patients with lipedema: the LIPODIET pilot study. Obesity Science and Practice 2021, n/a (n/a).

(21)Donahue, PMC; Crescenzi, R.; Petersen, K.J.; Garza, M.; Patel, N.; Lee, C.; Chen, S.-C.; Donahue, M. J. Physiotherapy in women with early-stage lipedema: potential implications of multimodal manual therapy, compression, exercise, and educational interventions. Lympha Res Biol 2021.

(Video) Foundational Concepts in Lipedema with Promising Trends in Diagnosis, Wellness & Care - LE&RN

(22)Crescenzi, R.; Donahue, PMC; Petersen, K.J.; Garza, M.; Patel, N.; Lee, C.; Beckman, JA; Donahue, M. J. Measurement of sodium and adipose tissue of the upper and lower extremities in patients with lipedema. Obesity (Silver Spring) 2020, 28(5), 907–915.

(23)Schloßhauer, T.; Hot, C.; Hollen, A.-K. from; Spenato, S.; Rieger, U.M. Liposuction treatment improves the disease-specific quality of life of patients with lipedema. International Wound Journal 2021, n/a (n/a), 1-9.

(24)Herbst, K.L.; Hansen, E.A.; Cobos Salinas, L.M.; Wright, T.F.; Larson, E.E.; Schwartz, J. S. Research findings of lipedema reduction surgery in the United States. Plastic and Reconstructive Surgery - Global Open 2021, 9(4), e3553.

FAQs

What is the new treatment for lipedema 2022? ›

Tumescent liposuction, which uses a solution injected into the tissue to decrease pain and bleeding, has become a standard procedure in surgical treatment of lipedema.

Can you get rid of lipedema without surgery? ›

Treatment for Lipedema

Lipedema is a chronic condition with no cure. At Stanford, we offer therapies and surgery to improve symptoms, reduce leg size, and provide ongoing care and management. Surgical treatment (tumescent liposuction and reductive surgery) is the most effective treatment to remove the fatty tissue.

What makes lipedema worse? ›

However, lipedema frequently does worsen with time due to the general trend toward increasing body weight and obesity (which is itself a progressive disease) with age. Psychological distress is often also a progressive disorder, one that typically amplifies feelings of pain and diminishes willpower and general health.

Will lipedema come back after liposuction? ›

It will not completely eliminate it. In most cases, lipedema pain, swelling and bulk stays reduced for many years (and possibly your whole life). However, it is possible lipedema can become worse.

What supplements help with lipedema? ›

Common ingredients of fat burning supplements are green tea, caffeine, chromium, carnitine, and conjugated linoleic acid. The use of fat burners could act synergistically with a healthy diet and physical exercise for decreasing adipose tissue deposition in patients with lipedema and resolve related health issues.

What is the best exercise for lipedema? ›

Aerobic exercises such as swimming, walking and cycling are especially recommended because they increase lymphatic drainage and improve blood flow through the affected limbs. High impact exercising (i.e. jogging, step-aerobics) or contact sports are better avoided as they may exacerbate join pain and lead to bruising.

How do I slim my lipedema legs? ›

How Can Lipedema Fat be Managed?
  1. manual lymph drainage therapists who gently open lymphatic channels and move the lymphatic fluid using hands-on techniques.
  2. exercise including whole body vibration and swimming, exercises that have been proven to move lymphatic fluid.

Can you massage away lipedema? ›

If you're living with lymphedema, lipedema, or a similar condition, you can take steps to get relief from pain and the other symptoms at home. Lymphatic massage can be used to relieve the swelling in your arms, legs, or other affected areas. The technique works by helping to promote lymphatic drainage.

How does mucinex help lipedema? ›

Mucinex / guaifenesin may help pain or it may work as an expectorant in lipedema tissue and thin out extracellular proteins. However, there are no studies to support these theories in lipedema.

What foods cause lipedema? ›

Pasteurized dairy products (yogurt, cheeses, milk) Animal meat high in fat (particularly red meat, bacon, sausage) Simple carbohydrates and sugars (potatoes, honey, white rice, pasta, or cereals) Highly processed or salty foods.

How do you break up lipedema fat? ›

Complete decongestive therapy (CDT): is used to treat both lymphedema and lipedema. CDT consists of manual lymphatic drainage (MLD), exercise, compression bandaging, compression garments, and skin care. CDT helps lipedema by decongesting swelling, encouraging normal lymphatic vessel pumping, and decreasing pain.

How I got rid of my lipedema? ›

Liposuction is the only treatment available to lipedema patients that eliminates the troublesome fat deposits from the legs, hips, buttocks, stomach, and/or arms. Liposuction enables doctors to improve the look of the legs and restore better mobility for the long-term.

Does coolsculpting work on lipedema? ›

DON'T: Treat Lipedema with Fat Freezing

Fat freezing—also known as cryolipolysis (or Cool Sculpting) uses cold temperature to reduce fat deposits in certain areas of the body. The procedure is designed to reduce localized fat deposits that do not respond to diet and exercise.

Can lipedema go away with weight loss? ›

Lipoedema patients can lose weight too. The legs will still look different to the upper body, even after weight reduction, but the symptoms are reduced.”

How do you get rid of lipedema naturally? ›

What are the natural remedies to treat Lipedema?
  1. Choose a Healthy Way of Life.
  2. Opt for a Healthy Skincare Routine.
  3. Make Healthy Dietary Changes.
  4. Regular Exercise.
  5. Lifestyle Changes.
  6. Decongestive Therapy and Compression Therapy.
  7. Invasive Therapies.
Jul 23, 2022

Is oatmeal good for lipedema? ›

Good To Eat

Whole grains: brown or wild rice, quinoa, oats, teff, millet, buckwheat etc.

What teas for lipedema? ›

Here are some herbs for an extra boost of anti-inflammatory action: ginger, garlic, turmeric(with black pepper for absorption), cardamom, green tea, rosemary, and cinnamon.

How do you stimulate lymphatic drainage in your legs? ›

Place one hand on your shin and the other hand on the back of your lower leg, just below your knee. Gently stretch the skin towards your upper leg and release. Shift your hands down and repeat this upward motion until you reach your ankle. Remember to stretch and release the skin up towards your knee.

Can lipedema cause belly fat? ›

Patients with lipedema (or lipoedema) can experience an abnormal buildup of body fat in different areas of the body. While this accumulation of lipedema fat occurs most in the legs, thighs, and arms, areas such as the stomach and the hips are possible too.

Can you tone lipedema legs? ›

Good for toning the whole body, front and backstroke swimming is a great exercise for lipedema patients. Increasing and or maintaining muscle mass is very important for lymph circulation and overall mobility. Make sure you utilize both your arms and legs when swimming.

Can you drain lipedema? ›

Lymphatic drainage massage is a highly specialized massage technique performed on lymphedema and lipedema patients to help manage painful symptoms. If you're suffering from common complications associated with either disorder, such as discomfort and swelling, lymphatic drainage massage is sure to rub you the right way.

What foods should be avoided with lymphedema? ›

Some foods can exacerbate lymphedema symptoms because of the way they are processed and the additives or high salt content they contain. These foods include added sugars — specifically fructose — refined grains, chemically modified fats and most animal and dairy products.

Is lipedema caused by overeating? ›

Lipedema, a disease of the lymphatic system, is an abnormal buildup of fat cells in the legs, thighs and buttocks. The fat cells continue to expand. Normally, fat cells expand when you overeat and shrink when you diet. This is unfortunately not the case with lipedema.

What antioxidants help lipedema? ›

Hesperidin and diosmin are antioxidant treatments currently suggested for lipedema treatment [13], and use of quercetin, pycnogenol [24], flavonoids [25], rutosides [26], and butcher's broom [27] was previously reported in treatment of lipedema and/or lymphedema.

Does vibration help lipedema? ›

In addition to several other procedures and treatments for lipedema, pump therapy, whole-body vibration, and dry brush massage can also increase the circulation of lymph fluids and provide relief from the sometimes painful symptoms.

Do compression socks help with lipedema? ›

Compression garments reduce lipedema or at least sustain it where it is. In stage 1, seamless, round-knit compression stockings in 15-20, 20-30, or 30-40 mmHg can often be used. But experts recommend flat-knit compression care in most cases.

Does deep tissue massage help lipedema? ›

Lymphatic massage is proven to help lymphedema and lipedema with secondary lymphedema. There are many different deep tissue massage techniques, but they rely on greater pressure focused on tissues below the superficial lymphatics.

Is lipedema a hormone imbalance? ›

Lipedema is a painful fat disorder which predominantly affects women and develops during times of hormonal fluctuation including, but not limited to, puberty, pregnancy, and menopause [1,6].

Can estrogen help lipedema? ›

All these data confirm that the physiological impact of estrogen is altered as females passes through reproductive benchmarks, and thus estrogen may be a potential treatment of Lipedema patients.

How do you stop lipedema getting worse? ›

The Only Way To Reset Lipedema Progression: Lymph Sparing Liposuction
  1. Manual Lymphatic Drainage Massage (referred to as MLD).
  2. Adopting a diet focused on low levels of carbohydrates and limited refined foods.
  3. Beginning and maintaining regular exercise activity that's low impact, such as water exercise.

Are apples good for lipedema? ›

Add The Following Food Items in your Diet Plan for Lipedema

Fruits – Intake of berry fruits, citrus fruits, bananas, cherries, avocado, apples, pears, grapes, pineapple, melon, peaches, and apricots can be highly beneficial for this disease.

Is lipedema autoimmune? ›

For some women it is impossible to lose weight because of an under-diagnosed autoimmune disorder many people have never heard of called lipedema. Los Angeles-based surgeon Dr. Jaime Schwartz diagnosed Cruz with the condition. As many as 1 in 9 women may suffer from the condition, according to Dr.

How do you dry brush for lipedema? ›

How to Dry Brush
  1. Use the brush dry and not with water. ...
  2. Use long gentle firm strokes – the idea is to stimulate, not to irritate the skin.
  3. Cover all surfaces front and back (except the face).
  4. Start at the feet and brush up towards the knees, groin, abdomen, and chest.

Is it possible to reverse lipedema? ›

Lipedema is a chronic condition with no cure. At Stanford, we offer therapies and surgery to improve symptoms, reduce leg size, and provide ongoing care and management. Surgical treatment (tumescent liposuction and reductive surgery) is the most effective treatment to remove the fatty tissue.

What diseases are associated with lipedema? ›

Lipedema is described as “adiposis dolorosa,” or painful fat, and is related to the more extreme adipose tissue disorder, Dercum's disease.

Is lipedema treatment covered by insurance? ›

For your lipedema surgery to be covered by insurance, there must be a medical reason to do so. This reason can be the presence of swelling, pain or problems with mobility and other activities of daily living.

Does Kybella work on lipedema? ›

Kybella is FDA approved only to treat submental fat or fat under the chin. It can be used off label to improve lipoma or lipedema but it will not remove them.

Do diuretics help lipedema? ›

2.8 Long-term use of diuretics should be avoided in people with lipedema. (⊕B) Diuretics do not treat the main cause of edema in lipedema which is inflammation.

What happens if you don't treat lipedema? ›

If left undiagnosed, it leads to more risk of health concerns and in most cases, emotional issues. Although Lipedema starts off as a cosmetic concern for women, if left untreated, it can have life-threatening consequences. Affecting up to 11% of women, Lipedema becomes a painful and, in some cases, crippling disorder.

How does selenium help lipedema? ›

Background: Selenium is a trace element, which is utilized by the human body in selenoproteins. Their main function is to reduce oxidative stress, which plays an important role in lymphedema and lipedema.

Is lipedema treatment covered by Medicare? ›

Cost. Lipedema is not currently recognised by Medicare as a rebatable medical condition, so surgery attracts no Medicare or private health insurance support and is very expensive. For information about the cost of this procedure, contact our clinic on +61 (2) 9812 2950.

Does coolsculpting work for lipedema? ›

DON'T: Treat Lipedema with Fat Freezing

Fat freezing—also known as cryolipolysis (or Cool Sculpting) uses cold temperature to reduce fat deposits in certain areas of the body. The procedure is designed to reduce localized fat deposits that do not respond to diet and exercise.

How do you stop lipedema from progressing? ›

A heart-healthy diet may help slow the progression of lipedema, especially if you learn about your condition early on. Exercise, especially swimming, biking and walking, are helpful for mobility and to reduce swelling.

Is lipedema covered under insurance? ›

For your lipedema surgery to be covered by insurance, there must be a medical reason to do so. This reason can be the presence of swelling, pain or problems with mobility and other activities of daily living. A FCE can help you demonstrate issues you have with sitting, standing, carrying, bending, etc.

Can lipedema be a disability? ›

Lipedema is a chronic and progressive disease that can lead to considerable disability, daily functioning impairment, and psychosocial distress 1, 2.

Does lipedema go away with weight loss? ›

Lipoedema patients can lose weight too. The legs will still look different to the upper body, even after weight reduction, but the symptoms are reduced.”

Why is lipedema not covered by insurance? ›

Since there is no specific ICD-10 code for lipedema disease, most medical insurers chose not to recognize Lipedema as a medical disease.

Why does mucinex help lipedema? ›

It is thought guaifenesin may be working as a muscle relaxant effect that occurs in these conditions. Mucinex / guaifenesin may help pain or it may work as an expectorant in lipedema tissue and thin out extracellular proteins.

Is lipedema caused by hormone imbalance? ›

Lipedema is a painful fat disorder which predominantly affects women and develops during times of hormonal fluctuation including, but not limited to, puberty, pregnancy, and menopause [1,6].

Does lipedema show on MRI? ›

Computed tomography and MRI images in patients with lipedema, on the other hand, typically demonstrate diffuse fatty hypertrophy throughout the bilateral lower extremities without skin abnormalities (Figure 4).

What happens if lipedema is left untreated? ›

If lipedema is not treated, complications that are detrimental to mental health and life-threatening can occur. These complications include mental problems such as eating disorders and generalized complications including hypertension, diabetes, and heart failure.

Videos

1. Lipedema: Evidence-Based Truths - Dr. Omar Beidas
(Lympha Press USA)
2. A Deeper Dive Part One: The Emotional Impact of Lipedema: Navigating a Challenging Pathway - LE&RN
(Lymphatic Education & Research Network (LE&RN))
3. Nutrition and Diets for Lymphedema and Lipedema - What are the Best Kinds?
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4. You, Me, We in the Lipedema Community: The Power of Belonging
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5. Lipedema: Cooling the Fire Within - Dr. Karen Herbst
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6. Keynote Address Three Years of Lipedema Politics, Research and Potential Treatment Breakthroughs
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Introduction: My name is Dr. Pierre Goyette, I am a enchanting, powerful, jolly, rich, graceful, colorful, zany person who loves writing and wants to share my knowledge and understanding with you.